Yesterday we went to see the dietitian she did the usual weight height regime and then asked about his eating. I explained how he was pretty much surviving on a bowl of coco rocks and then Pepsi max with minimal food in between and she then dropped the bombshell that he had started to lose weight and now needs some help with his intake. Its a small thing in the big picture but 2 yrs ago we worked hard with Cam to get him off liquid meals and onto proper food and we were getting there - he was just starting to take in a balanced food intake and in portions that were amazing for cam !! Now we are starting with 1 milkshake meal a day and will reevaluate if his eating doesn't improve.
The oncologist will tell us he will need a NG tube and be fed overnight if he doesn't pick up because Cameron just doesn't have the weight to lose !! So we are obviously zooming backwards at the moment on this roller coaster ride here's hoping Monday sees us on the final straight !!! (If that even exists ????)
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