Well I have good news in that we came home with an eye in and its pretty definite that the growth is scar tissue but the consultant said although Cam needs the operation now they do not have theatre space anymore for the required length of time so it has gone to the trust to be approved ????? Not really sure what to think to that as he also said that he could cancel 3 other procedures to gain the time so surely its his choice then and the other kids are coming first and he is just hiding behind hospital protocol. They did say that as the infection has cleared it is no longer seen as life saving surgery so they can take their time arguing for theatre space. I went mad at that as they dont have to watch Cam in pain or anxious to the point of distraction because he doesnt know what is happening.
He Gave me anatesthic drops for his eye to take him out of pain but then said it would only be effective for an hour tops and if I use them too often they wont work at all - whats the use in having them then ???
Im seriously contemplating complaining about our care for the first time ever - just feel like we are being side lined as insignificant .
If one more person congratualtes me on everything going well today I swear I will scream !!
Rant over.
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